Current Results:

Those surveyed to date.

  • Number of people taking part: 537 (366 Male, 126 Female)
  • Average age at diagnosis: 33 years
  • Average age at first symptoms: 24 years
  • Time delay from symptoms to diagnosis: 9 years

Questions and Comments

General questions and comments about AS, submitted by other users of this website, may be found here.

If you would like to ask some general questions or have comments or experience that you feel would be of benefit to others, please contact Sinead at s.brophy@swansea.ac.uk.

Contact Us

Contact Sinead on:
Email: s.brophy@swansea.ac.uk
Tel: 01792 602058
Post: School of Medicine, Swansea University, Swansea SA2 8PP.
Contact Liz on:
Email: e.m.irvine@swansea.ac.uk
Tel: 01792 295621
Post: Swansea University, Swansea University, Swansea SA2 8PP.

The new AS In Wales website is now live! Please click here to be redirected and discover the AS Health community!

If you live in Wales and have a diagnosis of AS we would greatly like your help.

Purpose of the study:

To look at ways of identifying people who will develop severe AS.

We would like to identify patients who could benefit from early use of intense therapy in order to prevent the development of severe AS.

We want to examine the impact and cost of AS in order to better estimate the cost of new treatments, so that hopefully they are made available for people with AS sooner.

The study can therefore help improve care for people with AS.

For instructions on how to participate please click here



The November 2009 edition of the AS In Wales Newsletter is now available to download here.

Newsletter

Quotes from participants:

  • “The main problems with AS are the impact a lack of sleep has on my daily life. This affects my concentration levels and often leaves me feeling deflated and demotivated”
  • “I would like a medical cure for AS and better employers understanding of back problems, would love to change that, as I have felt under pressure to leave once employers know you have back trouble.”
  • “AS stopped me being a member of the 'special forces' climbing mountains to the level I would like and jumping out of aircraft. Might not seem too bad but it was devastating for me, I now live with it.”
  • “Everyone that has AS is different, I have two brothers one has active AS that left him hardly able to walk but since he had anti-TNF he can do anything. The other brother not a thing wrong with him”
More Quotes